Dion's random ramblings

Thursday, February 15, 2007

Liam the great is (re)born


Today is the 15th of February 2007 (but you knew that already, didn't you?) Tomorrow Liam will be exactly three months old (as you may remember he was born last year on the 16th of November). However, since he was only supposed to be born this past Sunday (11 February) he is now only really 4 days old!

Today was also a very special day for us all. We have been waiting for it since he was a week old. We have had to wait until he was three months old before we could take him for an MRI scan to ascertain the exact location, size, and extent of the brain damage he had contracted as a result of the two grade 1 and one grade 4 bleeds in his brain. Well, today was that day. This morning Megie fed him at about 4.30 AM and then did not feed him again until just before the MRI, we also did our best to keep him awake from when he woke up after that early feed (about 6.30) until it was time for him to go for the scan. It seems quite strange to keep your baby awake, when normally you are trying to get him to sleep! The purpose of this was quite simply so that if he needed to be sedated he would not have eaten, but if he did not need sedation (which we discovered he could not have because he is too small) he would feed and then fall asleep with a full tummy.

We only had one 'paid' shot at the MRI (our medical aid only covers one MRI per family per year). So, we needed little Liam to lie still in that huge tube for the 30 or so minutes it would take to get the scans that were needed. Thankfully he was VERY well behaved (as we have known him to be).


So, here's the good news! The MRI showed that none of the three bleeds had caused any further problems. Also, the most severe of the three bleeds (the one in the right hemisphere) had not formed into a cyst and was draining naturally! And, whereas it had previously damaged about 15% or the right hemisphere, it now only occupies about 3 or 4 % of the mass of the right hemisphere as this picture shows (the damaged area is the lighter spot you can see in the top center of this picture). Nice looking brain that! I hope he will be a Doctor... but not like his dad, I want him to be a real doctor... But who knows!?


In fact, our doctor thinks that this cavity will simply leave some scaring and disappear over time. She said it is a miracle that he had recovered so well! The report indicates that there is no further damage, and that the small scar that is left will present much fewer problems than any of us had anticipated! How awesome is that!? Neither Megie nor I can believe just how blessed we have been. We are so undeserving of God's grace! Although, we are grateful that we have received it. And, as my friend Pete's recent post points out, we also don't know why we are fortunate to benefit from this grace... All that we know is that it happened, and for that we are grateful!

So, as of today Liam is born... again.... he is perfect in every possible way! He is truly a gift from God to us! And we are grateful.

We also received another bit of great news today! The background is that we have a very good medical plan that is an arrangement between the Methodist Church of Southern Africa and Pharos Private Health Administrators. However, as with all health plans there are limits to the cover we receive. Liam's medical bills have reached close to R300 000 thus far, of which we have had to pay approximately R100 000, some of this was our members portion, but some had to be paid after we had reached a few of those limits, and in some instances simply did not have enough cover for necessary or required treatments (in particular he has to receive 6 injections to protect him from a respiratory virus called RSV, they cost R10 000 per injection! our medical aid can only pay R3200 for the whole year). We have jokingly said that we are going to insure his legs for R30 000 each! However, the reality for us was that after we had depleted our savings earlier in the year we took out a second bond on our home (which we are very fortunate to be able to do. Not very many ministers own property against which they could loan any money). However, here is the great news! Today we heard from the Methodist Connexional Office that they are able to assist us with half of the cost of the RSV injections! That is just so wonderful! It makes us feel so richly cared for! So, instead of having to pay R60 000 we only need to pay R30 000. What makes this even more special is that the representative from the medical aid, Sister Venter, sent the motivation to the Church office to make the request. We did not even have to do it ourselves. Now that is both grace and great service!

So, all in all it has been a day of great joy and blessing! Tonight I will sleep well (Megie on the other hand will wake up every two hours or so to feed. Thanks darling!) But, thank you all for your kind care, wonderful support, and constant prayers.

In these last months I have rediscovered the joy of talking to God and the privilege of living in community. It makes me feel better... It is the source of all true healing.

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6 Comments:

  • Janet says: I have been checking your blog since 5th Feb for an update............waiting with GREAT anticipation. Boy was it worth the wait! All I can say is ALL PRAISE AND GLORY TO OUR AWESOME GOD!!! And well done Meggie! Now keep going from strenght to strength - ALL of you!
    Love and BIG blessings
    Janet
    Coronation Ave

    By Anonymous Anonymous, at 11:00 PM  

  • Hallelujah! God is gracious indeed. So glad for you guys. It all sounds very familiar - Flavia is supposed to have 2 MRIs a year but is only having one. We extended our bond and MCO came to our assistance. Despite the cost - how do we measure it compared to the wonderful privilege of health. Here's looking at you Liam!

    By Anonymous Sharky, at 11:02 AM  

  • Praise the Lord for She is great!

    We are soooo happy for you.

    Blessings to all

    By Blogger Wessel Bentley, at 12:41 PM  

  • gruntled

    By Blogger Gus, at 4:06 PM  

  • Well this is incredible news Dr Dion. We are so pleased to here that not only has God been graceful to Liam, but that you have been able to hold on to God's faithfulness through this time. As always, we keep praying for you guys. Lots a love and Blessing all round...JAT

    By Blogger The Fridge Elf, at 6:53 PM  

  • Amen, and my heartfelt good wishes to all three of you. beautiful story Dion. Thank you for sharing it with us.

    ~ smw

    By Blogger Stewart, at 1:49 PM  

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